A: Prader-Willi Syndrome (PWS) is a complex genetic disorder affecting various aspects of physical, mental, and behavioural health. It is characterized by symptoms like insatiable hunger, low muscle tone, and developmental delays.
A: The exact prevalence of PWS in India is not well-documented. However, it is estimated to be similar to global prevalence, affecting approximately 1 in 10,000 to 25,000 births.
A: IPWSA is dedicated to raising awareness about PWS in India, providing support services for individuals and families affected by PWS, and advocating for improved resources and understanding.
A: You can get involved by becoming a member, sponsoring our initiatives, or volunteering your time. Visit our “Get Involved” page for more information and registration forms.
A: IPWSA provides a range of resources, including information on healthcare providers specializing in PWS, support groups, educational materials, and government programs assisting people with disabilities.
A: Donations to IPWSA support various initiatives, including educational programs, organizing events, providing financial assistance to families, and contributing to research and awareness campaigns.
A: Yes, with proper support and resources, individuals with PWS can lead fulfilling lives. IPWSA is committed to enhancing the quality of life for those affected by PWS through various programs and services.
A: While there is no cure for PWS, various interventions, including growth hormone therapy, dietary management, and behavioural support, can help manage symptoms and improve the quality of life for individuals with PWS.
A: Growth hormone therapy is often a key component of PWS management. It helps improve muscle mass, reduce body fat, and support height development. Consultation with healthcare providers is essential to determine the appropriateness of this therapy for individuals with PWS.
