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About
Organization

Angel

WHAT IS IPWSA

Indian Prader-Willi Syndrome Association (IPWSA) is a non-profit trust founded & run by parents of Prader-Willi Syndrome (PWS) patients. It is dedicated to improving the lives of individuals with PWS in India. IPWSA was founded in 2010 by recognizing the need for greater awareness and support for people with PWS and their families. Our main aim is to spread awareness about this syndrome, help individuals & families connect to specialists, provide them with free diagnosis, psychological support & short-term financial support. We strive to become the SOS number for all PWS families who need any kind of assistance, with respect to medical emergencies or aid.

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Our Mission

MISSION & VISION

  1. Mission : (Early diagnosis & Early intervention) Our mission is to improve the lives of individuals with PWS in India by providing education, advocacy (awareness programs), and support services. We strive to promote greater understanding of PWS and enhance the quality of life for individuals with the condition and their families.
  2. Vision : Our vision is a world where individuals with PWS receive the care and resources they need to thrive, and where they are fully integrated into their communities. We envision a society where individuals with PWS are valued, respected, and have the opportunity to reach their full potential at par with the normal peers.

Our Mission

What we Do

Our Statistics

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Dollars We Collected
Team

Meet our Team

MS.SHIKHA METHARAMANI
(President & Founder) +91 9830078191
MR.ROHIT NAGRATH
(Founder Trustee) +91 8968291910
MR.SRI HARSHA
(South Co-ordinator) +91 9663365103
MR.MICHAEL JOHN
(South Co-ordinator) +91 8123417539
Shikha Metharamani
President & Founder
Rohit Nagrath
FOUNDER TRUSTEE & NORTH CO-ORDINATOR
Bella Crusio
Leader
Cesario Lee
Founder
Shikha Metharamani
President & Founder
Mike Carter
Manager
Bella Crusio
Leader
Cesario Lee
Founder
Donors

Who Help Us